Well the past several days have been good. Very tiring but good. The electricity went out for a bit last nite. So we asked for a back up o2 tank. They brought it this afternoon. It seems supplies can run low quickly so they brought a few other items as well. It seems I have to call every other day. They said that as time goes on they will get our supplies on a schedule. Which will be very helpful.
Braden has been awake more and we have been trying to entertain him. It's alot of work between diapers, feedings, and changing of bed clothes and clothing. Not to mention trach care, meds and making sure the equipment is taken care of. Also today I started using the cloth diapers (temporarily) to try and clear up his bottom rash. He went thru a whole stack already today. I don't know if I have enough to keep up. Braden is worth every bit of our time and he is doing so well. He looks at us when we talk to him. If he's fussy he calms down when we read to him. He loves his play gyms and is even holding his wubbanub pacifier himself most of the time.
I will try to get some more photos over the next few days. We have our ENT doctor visit late Friday. So it'll be a busy day. With all the work to juggle I may not post every day. It's just a little tough. Somedays it either blog or sleep. I think I need sleep. ha ha!
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- Our little Miracles
- This is the story of an amazing set of twins that were born 16 weeks to soon and their little brother Grayson. Kaleigh Grace who lived an amazing 13 days and we miss daily. Braden our super hero who is now 4. This is our journey in parenting with challenges above and beyond the norm.