Friday, April 16, 2010
A much needed haircut
Here are some new pics of Braden with his haircut. He always looks so much better when he gets one. I couldn't believe how much hair was falling when Sylvia was cutting his hair. He did much better this time in the chair and did not cry. Hopefully, the more often he goes the better he will do.
This week my Mom has stayed with us. Braden has warmed up to her and every time her or Stephen enters the room he goes straight for one of his balls. He is getting really good at throwing. He is so cute because he scoots backwards constantly. It's like he can't get far enough away.
We have several appts. over the next few weeks. Next week Braden gets his last RSV shot for the season. That appt. is scheduled on April 21 at 1:30 pm and he also has another passy muir evaluation at 8:30 am that same day. Then Friday April 23rd I have an ultrasound appt. at 9:30 am. I can't wait to see Grayson in 3D. We have missed out since going to the high risk Dr.. Their equipment isn't as up to date as Innervisions. On April 28th Braden has his yearly Eye appt.. I am really hoping he is still good and won't need glasses. April 29th at 1 pm he has to have the PH probe again. Not fun for Braden or Mommy. I don't know if y'all remember but it is a tube that goes down his nose like his old NG feeding tube but smaller. We have to put his arms in restraints to keep him from rubbing it out. He will not be happy and as strong as he is I'm sure it'll be a bad day. Thankfully it's only for one day and the next morning he will get it out. That is if he hasn't pulled it out by then.. like last time. On May 10th Braden will have his throat scoped by the ENT. This is the big one where we will find out what kind of reconstructive surgery Braden will need for his trach reversal. We will also find out if he can handle having the surgery or if adjustments have to be made on meds to control swelling and throat irritations. The ENT does not want to do reconstructive surgery if the airway can't heal properly. So the PH probe should let us know if Braden's Nexium is keeping his reflux under control. We are nervous yet excited about Braden getting his trach out. We really would love to see him get past this last big hurtle.
Grayson thankfully is still doing well. I am in my 33rd week and although I am exhausted most of the time I am thankful. Last week just a day or so before shot time I was experiencing nausea and stomach upset. Grayson was so active I felt like he was going to tear thru my tummy. I didn't have labor symptoms but this is how I felt a few days before I went into labor with the twins. Fortunately, my progesterone shot stopped the issue. I spoke to Dr. Wingos nurse Beth and she said to continue drinking as much water as possible and definitely take my progesterone shot on week 35. Week 35 shot will be the last one. So just a few more weeks. Which will hopefully keep Grayson in at least till full term 37 weeks. I can't believe we are so close.
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- Our little Miracles
- This is the story of an amazing set of twins that were born 16 weeks to soon and their little brother Grayson. Kaleigh Grace who lived an amazing 13 days and we miss daily. Braden our super hero who is now 4. This is our journey in parenting with challenges above and beyond the norm.