Thursday, May 27, 2010

We are HOME



Just a few pics of Braden and Grayson. We are home now and so happy to be back. Braden showed no signs of jealousy and seems to like his little brother. :-)

Wednesday, May 26, 2010

Grayson Update

Sorry for the delay in posting but this week has been a wild one. Braden had his procedures on Monday morning. His throat looked a little better but it will still require surgery to correct it. We will be meeting with his ENT soon to determine the details of the surgery. Along with his throat being scoped, they scoped his lungs to make sure there weren't any infections and make sure everything looks ok. He did have a slight bacterial infection which isn't anything to worry about - something they see in kids with trachs but he did start an antibiotic today to take care of the infection.

As we were pulling out of Vandy from Braden's long morning - Stephanie received a call back from her Doctor telling her it would be a good idea to go and get checked out at Baptist just to make sure Grayson was ok. Well, a few tests later and we were told her water broke and Grayson would be here that day. So, we start making calls to have people come and help with Braden while making sure Stephanie is as comfortable as possible for the delivery. 8 hours later it was time to push - things were going well then Grayson's heart rate started to drop and they couldn't keep it up. It went from 2 people in the room with us to 8 nurses rushing in and rolling Stephanie to the OR. Luckily she was drugged up and didn't know things were getting serious - unfortunately I was well aware. Lucky for us our NICU friend Vickie (one of Braden's respiratory therapists) was working that night and she walked with me to the OR letting me know everything was ok and he would be fine. Long story short they did a very quick C-section and Grayson looked good - no issues at all.

It has been a wild week but one we were anxiously awaiting. Braden has done very well considering he went through so much on Monday and being carted around between home and the hospital. He hasn't seen his little brother much but I am sure we will have some interesting pictures when they do get to meet again. Stephanie and Grayson are scheduled to come home tomorrow. Here are some new pictures of Grayson and one of Braden getting into trouble at home - the smile on his face lets you know he knows what he is doing!







Monday, May 24, 2010

Grayson Paul Harris

Grayson Paul Harris was born at 8:28 p.m. on 5/24/10. He weighed 7 lbs 9 ozs and was 20 inches long. It is late so I am going to keep it brief. Braden's procedures went well at Vandy this morning and of course Grayson had to make his arrival in style on the very same day. Mom and baby are doing great - I will update more tomorrow.





Sunday, May 23, 2010

Weekend pics





Just a few pics from this weekend. Braden has been exploring and climbing on everything. It's been so fun to watch. Monday early is Braden's scope. We will let you know what happens.

Friday, May 21, 2010

Braden standing on his own

It's a miracle I even got this on video. It's not the best video but at least y'all can see that Braden is able to stand on his own. Unfortunately, he decided to come after my phone instead of holding his position. But I am just happy to have captured this moment on video. Now if I could only catch him taking steps with his walker.
video

Thursday, May 20, 2010

Baby update

Well the good news is Grayson doesn't want to come out. So therefore his arrival won't be interfering with Braden's scope on Monday. That is a HUGE relief. The bad news is Grayson doesn't want to come out. :-( I want him to stay in as long as he needs too. However, it is very stressful not knowing since last time around everything went so horribly wrong. I have fears of not making it to the hospital to deliver. So the Doctor said today he cannot induce next week because I haven't dilated passed a 1. I am scheduled next Wed. for another ultrasound to check my amniotic fluid. It will be interesting to find out how much bigger Grayson has gotten. After the ultrasound we will find out what's next. Or maybe it'll be another just wait and see day. Not really sure... so now we WAIT.

I also have to say being off bedrest has really helped me. I feel much better now than before. I am not in nearly as much pain unless I over due then I pay like today. Yesterday we went to Baby's R US and shopped for some much needed items. Like a few sturdy gates, an additional monitor and boppy pillow. We also visited a few friends at the NICU. I was finally ready to donate the preemie clothes and blankets now that Grayson is full term. :-) Braden did really well and I am so disappointed because I brought my camera and then forgot to take photos.

Monday, May 17, 2010

This week...






Sooo since I am so close to possibly going into labor any day now I have constant help. Today my sister came to help with Braden and she took some cute photos. So I decided to share. We are now on week 38. Today I actually went to Bed Bath & Beyond and the grocery. It was so nice to get out of the house. Braden seemed to enjoy it too. Tomorrow he has a routine Urology appt.. He also has two therapies and Stephen finally found some missing 0-3 month and 3 month clothes for Grayson. So I will need to wash and get those put up. The rearranging is almost finished and it is so great to have the house in good order.

Braden has now pretty much gotten thru every barrier I have tried to use to restrain him. lol Good thing I am off bedrest. He has been escaping and taking over the house. He even cries now when I put him in his pack n play. He gets so mad at me. I still have to use it since he knocks over my water and tries to get at everything he shouldn't... I'm not sure what I will do when he learns to crawl out of it. But for now it works. We are still battling, as you can see in the photos, Braden taking off his HME. He finally learned how to get the O2 mask off so that little trick doesn't work anymore. :-( Oh well hopefully once Grayson gets here I will be more mobile and it won't matter anymore. I can get this baby weight off from chasing him and putting his HME back on. I'm just happy to see him progressing so much.

Thursday, May 13, 2010

Update on Braden & Grayson


Braden is doing great. He just got a new picture book from his Speech Therapist. He really likes it and is showing a huge interest. He is actually picking which toy he wants to play with using the pics. He is off to a great start. He is eating pretty good for Nana which is wonderful. It is nice to know he can be taken care of by someone else while Stephen and I are at the hospital. Also, Pop John has changed Braden's trach twice now. He is pretty comfortable with it so that is a huge relief as well. Braden has also been having huge spirts of energy. He is hilarious... He is climbing the footstool and sliding head first off of it. We really have to watch him. He climbs all over us when trying to hold him and he throws things all over the place. Such a typical BOY. He seems more focused during his therapy sessions unless he gets overly excited then he tends to wander a bit. But overall he is happy, energetic and progressing. We are anxiously awaiting the day he finally decides to walk. But for right now he is content with crawling, climbing, and standing. His therapist said he is doing well and developing his skills before trying to walk too soon. He should do very well with balance and coordination developing these other skills first before trying to walk too soon.

Today I saw my OB and he said I have dilated 1 cm. You have to be at 4 to be admitted for delivery. Grayson is due any time now and can come now if he wants... he is considered full term. YAHOO!!! So I am not worrying about doing too much anymore. I have been having alot of pain and trouble walking but nothing out of the ordinary. Apparently, the last few weeks of pregnancy are tough for everyone. Just no one seems to say much about it. So those that are pregnant for the first time just know its very tiring at the end. But with that said it is soooo worth it. Everyone wants their baby to be full term and this short term discomfort is soon forgotten once that baby gets in your hands. :-) Like my Doctor said this time around for us the short term pain is nothing compared to how much easier it'll be to take care of Grayson when he comes home. Braden had so much that Grayson won't... I mean really I can't imagine having a baby that doesn't have wires attached to him. Not to mention how big Grayson will be... he is estimated at about 7 pounds right now. Seems sooo unreal. I am so overwhelmed and anxious and ready. I can't wait to see Braden and his baby brother together. That first pic will be so joyful. I tear up just thinking about it. :-)

Friday, May 7, 2010

Organization

I can't even describe how complicated it is to be organized in the midst of all that has gone on over the past three years. Our house has literally been in complete shambles. Not to say that we haven't had loads of help with cleaning and laundry but no one can throw away and put away for you. That's just something that is too hard to dictate. Sooo this week Pop John has been helping us. I came up with a master plan of action to try and create more space despite more items needing to come down from the attic. Yes Grayson will add to the piles of stuff we already trip over on a daily basis. But thanks to Pop Johns heavy lifting we have really made a huge dent today in all the mess and clutter. I can actually see the floor again. I am more than thrilled. I really think we have made HUGE progress in a very short amount of time. I love when a good plan comes together. Not to mention I haven't really done anything but bark orders. lol I feel bad about that but Pop John has assured me he does not mind. :-) I think he really likes the changes and is proud to see it coming together.

I finally got the results back on Braden's Impedance probe. The Dr. says the results look GREAT.. :-) Hopefully that means Braden's airway will actually look good next scoping on May 24th. That is if Grayson doesn't decide to be born that day or around it. I had an appt. to see Dr. Wingo today but went yesterday instead. Apparently, Grayson has dropped and is super low in my belly. I can hardly walk at times. I still haven't dilated any but Dr. Wingo did say Grayson was lower than he should be for this week of pregnancy. I take that to mean he may come sooner rather than later. Which wouldn't bother me a bit. Just along as he waits till 37 weeks or after when he is considered full term. Officially 37 weeks is next Thursday and that is also the day I have my next OB appt..

Tuesday, May 4, 2010

Rescheduled

Well much to my disappointment Vandy had to reschedule Braden's scoping for May 24th. I suppose it's due to the flooding in Nashville. I know they had water on the first floor for at least a day. But I am so frustrated anyway because that will be my 39th week of pregnancy. Grayson could be here that week for all we know. I really wanted to get that done and over with before Grayson arrived. I know Stephen can take care of Braden but I have been with Braden for every hospital stay and every appt.. I can't imagine having him go into a procedure and not be there. :-( Hopefully, I can do both and not feel like I have to choose between my babies.

Braden's car

Braden's car

Adjusted age ticker

Lilypie 1st Birthday Ticker

Braden's new Car

Braden's new Car
1/10/08

Braden's new car

Braden's new car
1/10/08

Braden

Braden
Chick Magnet outfit 2

Braden

Braden
Chick Magnet outfit

Braden

Braden
12/13/08

Braden

Braden
12/13/08

Braden

Braden
Mr. Smiley

Braden

Braden
having a better day

Braden

Braden

Braden

Braden
11/2/08

Braden

Braden
11/2/08

Chillin on his boppy

Chillin on his boppy

Trying to take off his mitten

Trying to take off his mitten

Tummy time

Tummy time

Braden

Braden

Braden

Braden
10/3/08

Braden

Braden
Look Mommy I pulled out my nose tube again...

Braden

Braden
10/1/08

10/01/08

10/01/08

Braden

Braden
9/30/08

Braden

Braden
9/30/08

Braden in Camo

Braden in Camo

Braden

Braden
9/12/08

Braden

Braden
9/12/08

Braden

Braden
9/12/08

Braden

Braden
He loves to put his hand under his cheek. So cute...

Braden

Braden
Another photo to show how big Braden is...

Braden

Braden
Please ignore me in these photos. I just wanted you to see how big Braden has gotten.

Braden

Braden
9/10/08

Braden

Braden
8/21/08

Braden playing with his keys

Braden playing with his keys

Braden

Braden
8/17/08

Braden

Braden
8/17/08

Braden and Mommy

Braden and Mommy

Braden and Stephen

Braden and Stephen
8/10/08

Braden and Stephen

Braden and Stephen
8/11/08

Braden

Braden
8/06/08

Braden

Braden
8/6/08

Braden

Braden
8/6/08

Braden

Braden
8/6/08

Braden

Braden
After his bath

Braden

Braden
7/31/08

Braden

Braden
Tummy time

Braden

Braden
Playing in his mirror.

Braden

Braden

Braden

Braden
7/30/08

Braden

Braden
7/30/08

Braden

Braden
7/30/08 Braden checking out his wrist toy.

Braden

Braden
7/20/08 Enjoying his swing

Braden

Braden
7/18/08

Braden

Braden
7/15/08 Braden and his NG tube

Braden

Braden
7/7/08 Braden before his Dr. visit. He was happy this morning.

Braden

Braden
7/7/08 Braden looking at his Daddy taking his photo.

Braden

Braden
7/2/08

Braden

Braden
7/2/08

Braden

Braden
7/2/08 In his BeBe Pod. He's not sure if he like it just yet.

Braden

Braden
6/19/08

Braden

Braden
6/19/08

Braden

Braden
6/18/08

Braden

Braden
6/12/08

Braden

Braden
6/11/08

Braden

Braden
6/9/08

Braden

Braden

Braden

Braden

Braden's new toy

Braden's new toy

Braden and his Daddy

Braden and his Daddy

Braden

Braden
Last nite on his trach nose since we had no power. He did really well.

Braden

Braden
5/31/08

Braden & his wubbanub pacifier

Braden & his wubbanub pacifier

Braden at home

Braden at home

Braden and his tummy time Boppy

Braden and his tummy time Boppy

Braden

Braden
5/29/08

Braden

Braden
5/29/08

Braden

Braden
5/27/08 Getting set up at home.

Braden

Braden
5/27/08 in the van.

Braden

Braden
5/27/08 On our way out of the hospital

Mommy and Braden :-)

Mommy and Braden :-)

Braden and nurse Sherry

Braden and nurse Sherry

Braden's home coming

Braden's home coming
5/27/08 In his carseat. :-)

Braden

Braden
5/24/08

Braden

Braden
5/23/08

Braden

Braden
5/22/08 Braden with Nurse Patty

Braden

Braden
5/20/08

Braden

Braden
5/20/08 Braden and his nurse Stacy

Braden

Braden
5/19/08

Braden

Braden
In one of Missy's outfits. Can you see how big he is.. in his newborn clothes.

Braden

Braden
With Nurse Rachel. He is not mad at her he's got gas. :-)

Braden

Braden
5/17/08

Braden

Braden
5/17/08

Braden

Braden
5/16/08

Braden

Braden
5/16/08

Braden

Braden
5/16/08

Braden

Braden
5/16/08

Braden

Braden
5/14/08

Braden

Braden
5/14/08

Braden

Braden
5/14/08

Braden

Braden
5/14/08

Braden

Braden
5/14/08

Braden

Braden
5/14/08

Braden

Braden
5/14/08

5/11/08

5/11/08
Braden

Braden

Braden
5/11/08

Braden

Braden
5/10/08

Braden

Braden
5/10/08

Braden

Braden
5/10/08

Braden

Braden
5/10/08 4th months old today

Braden

Braden
5/7/08

Braden

Braden
5/7/08

Braden

Braden
5/7/08

Braden

Braden
5/4/08

Braden

Braden
5/4/08 Dressed up in his puppy dog attire.

Braden

Braden
5/4/08 Look at those big beautiful eyes.

Braden

Braden
5/4/08

Braden

Braden
5/4/08 Taking his bottle like a big boy.

Braden

Braden
5/4/08

Braden

Braden
5/4/08 In cousin Riley's lightning outfit.

Braden

Braden
5/3/08

Braden

Braden
5/3/08

Braden

Braden
5/3/08

Braden

Braden
5/3/08

Braden

Braden
5/3/08

Braden

Braden
5/1/08

Braden

Braden
5/1/08

Braden

Braden
5/1/08

BRADEN

BRADEN
5/1/08

BRADEN

BRADEN
5/1/08

Braden

Braden
4/30/08

Braden

Braden
4/30/08

Braden

Braden
4/29/08

Braden

Braden
4/29/08

Braden

Braden
4/28/08

Braden

Braden
4/28/08

Braden

Braden
4/26/08

Braden

Braden
4/26/08

Braden

Braden
4/26/08 Frog feet pajamas from Ashley.

Braden & Family

Braden & Family
4/26/08

Braden & Family

Braden & Family
4/26/08

Braden

Braden
4/26/08

Braden

Braden
4/26/08

Braden

Braden
4/25/08

Braden

Braden
4/25/08

Braden

Braden
4/24/08 In his bouncy seat.

Braden

Braden
4/24/08

Braden

Braden
4/22/08

Braden

Braden
4/22/08

Braden

Braden
4/22/08

Braden

Braden
4/21/08

Braden

Braden
4/21/08 Getting a break from his bottle

Braden

Braden
4/20/08

Braden

Braden
4/20/08 King Braden in his frog outfit

Braden

Braden
4/19/08

Braden

Braden
4/19/08

Braden

Braden
4/19/08

Braden

Braden
4/19/08 Taking his bottle

Braden

Braden
4/19/08 Wide awake after his feeding.

Braden

Braden
4/18/08

Braden

Braden
4/18/08

Braden

Braden
4/15/08 In his big boy bed

Braden

Braden
4/15/08

Braden

Braden
4/13/08 Look both eyes. :-)

Braden

Braden
With both eyes open 4/13/08

Braden

Braden
4/12/08

Braden

Braden
4/11/08

Braden

Braden
4/11/08

Braden

Braden
4/11/08

Braden

Braden
4/10/08

Braden

Braden
4/10/08

Braden

Braden
4/10/08

Braden

Braden
4/9/08

Braden

Braden
4/9/08

Braden

Braden
4/7/08

Braden

Braden
4/7/08 still at Vandy

Braden

Braden
4/2/08

Braden

Braden
4/2/08

Braden

Braden
4/2/08 Daddy holding Braden for the first time.

Braden

Braden
4/1/08 Dino outfit and blanket

Braden

Braden
4/1/08

Braden

Braden
Braden and Nurse Missy who sang a very lovely song to him tonite.

Braden

Braden
4/1/08

Braden

Braden
4/1/08

Braden

Braden
3/31/08

Braden

Braden
3/31/08

Braden

Braden
3/31/08

Braden

Braden
3/31/08 Braden is now 36 weeks gestational age. He will be 3 months old on April 10th.

Braden

Braden
3/31/08

Braden

Braden
3/31/08 Sleeping so peacefully

Braden

Braden
3/31/08 Momma holding Braden

Braden

Braden
3/31/08 He's telling them to be quiet or he's thinking. You decide.

Braden

Braden
3/31/08 Patty pics

Braden

Braden
3/28/08 Such a cutie :-)

Braden

Braden
3/28/08 Braden's alligator apparel

Braden

Braden
3/28/08 The Green bean bag alien from Roswell.

Braden

Braden
3/25/08

Braden

Braden
3/25/08

Braden

Braden
3/25/08

Braden

Braden
3/25/08

Braden

Braden
3/24/08

FEEDJIT Live Traffic Feed

Braden

Braden
3/24/08

Braden

Braden
3/24/08

Braden in Camo

Braden in Camo
3/23/08

Braden in Camo

Braden in Camo
3/23/08

Braden

Braden
3/23/08

Braden

Braden
3/23/08

Braden

Braden
3/20/08 Look how big he's getting.

Braden's new isolette

Braden's new isolette
3/18/08

Braden's new Isolette

Braden's new Isolette
3/18/08

Braden

Braden
3/16/08

Braden

Braden
3/16/08

Braden

Braden
3/16/08 Photo from last nite while Mommy held Braden

Braden

Braden
3/15/08

Braden

Braden
3/15/08

Braden

Braden
3/14/08

Braden

Braden
3/14/08

Braden

Braden
3/14/08

Braden

Braden
3/14/08 This duck is not as big as it looks.

Braden

Braden
3/14/08

Braden

Braden
3/12/08

Braden

Braden
3/12/08

Braden

Braden
3/11/08 New bedding..

Braden

Braden
3/11/08 Both eyes open. Taken with the lights down and no flash. He won't open them otherwise.

Braden

Braden
3/11/08

Braden

Braden
3/11/08 Doesn't he look bigger?

Braden

Braden
3/11/08

Braden

Braden
3/10/08 2 months old today. :-)

Braden

Braden
3/9/08

Braden

Braden
3/9/08

Braden

Braden
3/9/08

Family photo

Family photo
3/7/08

Braden

Braden
3/7/08 Photo by Aunt Paula

Braden

Braden
3/7/08 Our first family photo

Braden

Braden
3/7/08 Braden's tooth. Photo courtesy of Nurse Patti

Braden

Braden
3/7/08

Braden

Braden
3/6/08

Braden

Braden
3/6/08

Braden

Braden
3/6/08

Braden

Braden
3/5/08

Braden

Braden
3/5/08 Photo by Aunt Paula

Braden

Braden
3/3/08 With his mittens and hat to warm him up after his bath.

Braden

Braden
3/3/08

Braden

Braden
3/3/08

Braden

Braden
3/3/08

Braden

Braden
3/3/08

Braden

Braden
2/29/08

Braden

Braden
2/29/08

Braden

Braden
2/29/08

Braden

Braden
2/29/08

Braden

Braden
2/28/08

Braden

Braden
2/27/08

Braden

Braden
2/27/08

Braden

Braden
2/27/08

Braden

Braden
2/26/08

Braden

Braden
2/26/08

Braden

Braden
2/05/08

Braden

Braden
2/25/08

Braden

Braden
2/22/08 Evening visit

Braden

Braden
2/22/08 Daddy's a little better at taking my photo.

Braden

Braden
2/22/08 This is what happens when Mommy forgets to turn off the flash.

Braden

Braden
2/18/08 You can see he is still very little even though he's reached 2 lbs.

Braden

Braden
2/18/08 Look zero tubes :-)

Braden

Braden
2/18/08

Braden

Braden
2/16/08 Is that a smile on his little face:-)

Braden

Braden
2/16/08

Braden

Braden
2/16/08

Braden

Braden
2/16/08

Braden

Braden
2/16/08 Still off the vent what a trooper.

Braden

Braden
2/14/08

Braden

Braden
2/14/08

Braden

Braden
2/12/08

Braden

Braden
2/11/08

Braden

Braden
2/11/08 Braden on his camo and frogs blanket. Very Cute.

Braden

Braden
2/11/08

Braden

Braden
2/11/08

Braden

Braden
2/7/08

Braden

Braden
2/6/08

Braden

Braden
On his own blue bunny blanket given to him by Judy G.. :-)

Braden

Braden
2/6/08 with his purple passy

Braden

Braden
2-4-08 Sometimes it's just too hard to get a non blurry shot. He is so small. But, this is a picture without tape on his chin.

Braden

Braden
2/2/08

Braden

Braden
2/2/08

Braden

Braden

Braden

Braden

Braden

Braden
2-1-08

Braden

Braden
Our little superman 2-1-08

Braden

Braden
1-29-08

Braden's new hat

Braden's new hat
1/29/08

Braden

Braden
1-28-08

Braden

Braden
1-28-08

Braden

Braden
1-25-08

Braden

Braden
1-25-08

Braden

Braden
1-21-08 All I want to do is sleep.

Kaleigh

Kaleigh
1-21-08 Both eyes open and a non blurry picture. Thank you Daddy.

Kaleigh

Kaleigh
1-21-08 with both eyes open. Mommy had a hard time with the camera so my apologies for the blurred photo.

Braden

Braden
1/20/08 Little Kaleigh's photo last nite didn't come out. They had her in the dark so it was difficult to get a good shot. :-(

Braden John

Braden John
1-19-08 Still sleeping away and really tired but doing very well.

Kaleigh Grace

Kaleigh Grace
1-19-08 She doesn't look so comfortable but they had just flipped her back on her back. She would rather be on her belly.

Kaleigh

Kaleigh
1-19-08 Good pic of her little face.

Braden

Braden
1-19-08 resting peacefully from a hard day of breathing on his own.

Braden

Braden
1-18-08 with his purple passy

Kaleigh

Kaleigh
1-18-08 evening

Kaleigh 1-18-08

Kaleigh 1-18-08
Our little hero has showed us that she is a fighter.

Braden

Braden
1-18-08 first day off his ventilator. :-)

Kaleigh 1-17-08

Kaleigh 1-17-08
Resting so she can get stronger.

Braden 1-17-08

Braden 1-17-08
Has his lamp off today. So we can see his cute little face.

Kaleigh

Kaleigh
Laying on her pink gingham blanket. They just changed out that morning.

Braden

Braden
That's Mommy's hand on Braden's little head. In an effort to calm him.

Kaleigh

Kaleigh
They had Kaleigh on her side today. What a large diaper she has on.

Braden

Braden
Loves to sleep on his tummy. Kaleigh likes it too.

Braden

Braden
1/14/08 Stretched out and relaxed

Kaleigh

Kaleigh
1/14/08 crinkling her forhead

kaleigh grace

kaleigh grace
1/12/08

Braden John

Braden John
1/12/08

About Me

My Photo
This is the story of an amazing set of twins that were born 16 weeks to soon and their little brother Grayson. Kaleigh Grace who lived an amazing 13 days and we miss daily. Braden our super hero who is now 4. This is our journey in parenting with challenges above and beyond the norm.