We are now out of the PCCU. Today was another day of chest pounding and deep suctioning. Braden's chest x-rays looked better today but he is sounding really junky again. His O2 is now on 1 1/2 liters. He was suffering with withdrawals earlier today and I think finally he is going to sleep. He hasn't slept for 48 hours straight. Poor baby. At first they thought he may be suffering from delirium, but then our day shift nurse started leaning towards withdrawals. Later I noticed his pupils were dilated, he was slower to respond, he had poor eye contact and the shakes. I told our nurse and she said that confirms it he is having withdrawals. So now he is in rehab. Lol. Jk... but he is getting a round of drugs to taper so that he can level out and avoid withdrawal. He has also been very emotional. Crying one minute and laughing the next. He is exhausted. As I type he sleeps finally. After a long day he is getting some much needed rest.
So glad I can stay in his room and actually get some sleep too. Hoping for a peaceful night. Hoping soon we will be home and Braden can see his newly decorated room. Daddy and Pop John have worked really hard on painting, hanging all the artwork and installed ceiling fans in both boys rooms. :-) Thanks again everyone for keeping Braden in your prayers. This has been a rough couple of weeks. Braden is now only 23 pounds and has some serious recovery ahead of him.
Monday, May 30, 2011
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Braden
3/11/08 Both eyes open. Taken with the lights down and no flash. He won't open them otherwise.
Braden
2-4-08 Sometimes it's just too hard to get a non blurry shot. He is so small. But, this is a picture without tape on his chin.
Kaleigh
1-21-08 with both eyes open. Mommy had a hard time with the camera so my apologies for the blurred photo.
Braden
1/20/08 Little Kaleigh's photo last nite didn't come out. They had her in the dark so it was difficult to get a good shot. :-(
Kaleigh Grace
1-19-08 She doesn't look so comfortable but they had just flipped her back on her back. She would rather be on her belly.
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About Me
- Our little Miracles
- This is the story of an amazing set of twins that were born 16 weeks to soon and their little brother Grayson. Kaleigh Grace who lived an amazing 13 days and we miss daily. Braden our super hero who is now 4. This is our journey in parenting with challenges above and beyond the norm.



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