Monday's report

Today has went really well. Braden is now on .25 liters of O2. Which he handled very well even during his nap. We also took him off completely for a bit and he did fine up until he started trying to get some mucus out and couldn't. So we went ahead and had the RT do his CPT treatment (what I call chest pounding) and deep suctioning. This was the only one today. So yeah!!! We have reduced treatment. She got a good bit out and hopefully that will make his night go well. ENT had respiratory set him up with extra humidity and that will hopefully help with his strider. At home we crank up the frog humidifier and that seems to work well in his room, but here they have to make him wear a mask. If it gets him completely off O2 it will be great. Thursday will be the last day of his Ativan and methadone taper. So we are hoping all this means we may go home on Friday.

Braden did really well with physical therapy today and can stand up now with minimum support. He is very active but also sleeps a lot. Today after working so hard he took a 3 hour nap. He only got up because I made him. I wanted him to sleep good tonite and have a nice visit with his Daddy. Tomorrow Nana is coming and I am going to meet her at the car so she can come up and visit with Braden while I visit Grayson. Speaking of Grayson he had his one year check up today. He is 28.75 inches and 19 lbs 4 ozs. Barely on the growth chart. Pretty funny poor boys are short because of their Momma. :-)