Our house is very structured. But it's still a struggle. We get up at 6:00 - 6:30 am. We all get dressed and go down stairs for a little Daddy time before he goes to work. Then it's off to McDonald's to pick up some breakfast. After two weeks of cooking breakfast at home with no progress I broke down and started taking them to the drive-thru. I figure it can't hurt to get them out some especially since we are fixing to go on a 5 month lock down at home. It takes at least an hour to an hour and a half to feed Braden. So we usually don't get up from the table till 9-9:30. On therapy days I usually have to tube feed Braden. Which really stinks because I would like him to be able to eat by mouth if at all possible. I do get him to eat some just not as much and tube the rest to stay on schedule. Therapy days are usually on Wed. and Thursday which means getting out of the house by 8:30-9. Then we will stop at the Sonic after therapy. Tube feed B before school and then take him to school at 11. After we drop B off I usually take Grayson to the store to pick up whatever we need for dinner that nite. Then we go home clean eat lunch and then back to school for 1:30 to pick up Braden. After Braden gets home he has to be fed lunch. So I feed him and then put him down for a nap. Which can be 2 to 3 hours depending how tired he is.... Grayson either cat naps in the car to and from our destinations or occasionally naps with his brother. Those days are few but awesome. :-) While Braden naps I usually spend time with Grayson and do laundry. Braden gets up from his nap usually around 5. We talk about his day and then I let him and his brother play while I make dinner. Or depending on Stephen's schedule I may give the boys their baths and put their PJ's on and then make dinner. It's one or the reverse depending on his schedule. That way dinner doesn't get cold but the boys are still able to go to bed on time. If Stephen works late then I usually feed the kids before he gets home. They don't generally eat what we eat because neither can chew meat right now and neither like salad or mashed potatoes. That's right they won't eat mashed potatoes. :-( But my sister's kids don't like them either so at least they aren't the only one's. Both boys usually are in bed by 8. Grayson sometimes go to bed earlier and Braden at the latest 8:30 pm. On taekwondo nites they both go to bed around 8-8:30 and I usually cook something like tacos. Quick and easy. :-) After dinner the boys usually spend time with Stephen before they go to bed. Both boys still go to bed fairly easily. After the boys go to bed I clean the kitchen and try to spend at least an hour with Stephen then go to sleep around 10-10:30 depending on what else I may need to get done.
Braden is now in a regular twin size bed and he absolutely loves it and does great sleeping in it. He loves to be a big boy. He is helping brush his teeth and dressing himself more and more. I really think the routines app for Ipad has made him much more interested in doing those task himself. :-) I love things that assist in motivating him to do for himself. Grayson has times where he will scream for long periods of time if he is not ready to go to bed. So I make sure he is ready before putting him in his crib. He really does have a mean streak in him but overall he is a sweetheart. He plays independently very well and usually behaves. He isn't a big fan of going to the store and I usually have to run in grab what I need and go. But that's really not a bad thing since I don't really need to expose him to too many germs.
Just one more month till Nov 1st lock down. I am so sad as the boys are going to hate being home all the time. I will really have to work hard to do a nice preschool type schedule at home and hopefully work on some areas of development that just can't be done when we are on a tight schedule with Braden's school and therapy. In home will be much easier for working on Braden's eating skills as we will not have the time constraints that we do now. 1200 calories before bed is a short window when you factor in his schedule, being on the road, his long naps and length of time needed to eat a decent amount. No one knows that struggle unless you live in it daily. Even a parent whose child doesn't like to eat but a few foods (Grayson being one of those) cannot understand the struggles with feeding a child who has been vented and tubed and robbed of his natural ability to eat. He has lost precious time for his oral motor skills and those windows that open the door for speech. My Mom always wishes that she had the books we have today on parenting. Well I'd like to say that although I appreciate and find helpful some of those books they don't have all the answers. No two kids are alike and regardless of therapy and educating yourself on techniques to move your kids forward (preemie or typical) alot of the moving forward depends on the child. If they aren't willing it will hold them back. Bottom line if I have to feed Braden in front of the TV to get him to eat I'm doing it. Some people will say old habits won't be broken. Phooey people... the only habits that can't be changed are the one's you aren't willing to change. If Super Nanny can come in and change an entire family in two weeks than it can be done.
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- Our little Miracles
- This is the story of an amazing set of twins that were born 16 weeks to soon and their little brother Grayson. Kaleigh Grace who lived an amazing 13 days and we miss daily. Braden our super hero who is now 4. This is our journey in parenting with challenges above and beyond the norm.