My sister has a new Etsy site to raise funds for her cancer. She is adding new items daily. If you want to buy something that is also helping save a life please visit her site. She has a nice variety of accessories bags, necklaces, bracelets and more.
http://www.etsy.com/shop/JennaGJay?ref=seller_info
Braden's appt. with Dr. Wootten went well. Nothing really new to report and he will continue to do vocal cord injections until Dr. Wootten feels Braden is big enough to do surgery for a more permanent fix. Dr. Adams visit also went well. He said Braden will no longer need ultrasound check ups on his kidneys. He also said that Braden will have to have hydroseal surgery on his left side. Kind of a bummer as it's more surgery but again not anything big and fixable so we are thankful. The other good news is Dr. Adam can do Braden's hydroseal surgery same day as his vocal cord injection and still go home same day. :-)
Well I have to feed these boys so gotta run.....
Wednesday, November 30, 2011
Monday, November 28, 2011
Last years Tribute to Hailey
Thanksgiving week...
The boys are getting a little stir crazy being couped up in the house so much. If it wasn't for the breaks to McDonald's we would go nuts. Grayson and Braden both are really into climbing everything. Grayson is very independant yet needy and Braden is pretty much a snuggler and also somewhat independant. I have to say we are very fortunate the kids like to play by themselves. But we also have lots for them to do. They love their toys, games and videos. We play ball and t-ball alot. They both enjoy puzzles and sorting shapes is Grayson's favorite. They also like playing with their Baby E alphabet books. I may have to get a new set soon because they are pretty worn out. It is so amazing to watch Braden actually play with his toys and feed himself. He is doing so great and we are so thankful that being out of school hasn't hindered his progress. Both boys love their bath time and play really well in the tub.
This week Pop John and Nana are down to visit. The boys and Briley were really excited to see them. We are going to get alot of things done while they are here. :-) I have the entire downstairs reorganized and all the toys have been sifted thru to clean out the old and get some new. We really need toys in this house because the boys spend sooo much time here. It makes it easier on me as well because I have plenty of things to do with them.
Braden has two appts. this week. He has a visit with Dr. Wooten his ENT and Dr. Adams in Urology. Hoping for good reports and really hoping Dr. Wooten isn't going to scope B while he is awake but I'm afraid he might. :-( We are still waiting out the hydroseal issue with Braden and we are really hopeful that this visit will tell us no surgery is needed. Braden has been doing great at therapy and really does well with his homeschool teacher. I am really excited that he cooperates with Ms. Janet.
Well the boys are down for a nap and I could use one myself so we will update again tomorrow and let y'all know how the Dr. appts went...
This week Pop John and Nana are down to visit. The boys and Briley were really excited to see them. We are going to get alot of things done while they are here. :-) I have the entire downstairs reorganized and all the toys have been sifted thru to clean out the old and get some new. We really need toys in this house because the boys spend sooo much time here. It makes it easier on me as well because I have plenty of things to do with them.
Braden has two appts. this week. He has a visit with Dr. Wooten his ENT and Dr. Adams in Urology. Hoping for good reports and really hoping Dr. Wooten isn't going to scope B while he is awake but I'm afraid he might. :-( We are still waiting out the hydroseal issue with Braden and we are really hopeful that this visit will tell us no surgery is needed. Braden has been doing great at therapy and really does well with his homeschool teacher. I am really excited that he cooperates with Ms. Janet.
Well the boys are down for a nap and I could use one myself so we will update again tomorrow and let y'all know how the Dr. appts went...
Monday, November 21, 2011
What have we been up to....
Thankfully things have been pretty quite lately. Not to say the boys have been quite.lol Just doing really well at the moment. Braden has been going to therapy in clinic and so far so good. He really enjoys getting out and I just hope he will stay well. They have many precautions in place to keep their kids from getting sick. It also helps that Braden only has therapy one on one and not with other kids.
Braden is doing really well with his home school teacher. :-) He had his first in home speech session on Friday and his teacher said he is so smart. :-) He is really good at getting what he wants without words. I just wish it wasn't hindering him from speaking. I have been really good about making him sign and he has a new sign for movie that he uses often. He is also doing great eating. He will feed himself a grill cheese now. All I have to do is give him a few pieces at a time and he will eat. Now I just need to find a bigger variety. He will also eat sandwich crackers broken in 4's. Which is a big deal because use to if a pc was broken and not cut just perfectly he wouldn't eat it. He would throw the so called imperfect pieces on the floor. lol He is something else but we are so proud of him for getting over his need to everything to be perfect. He even gets his hands dirty now without too much stress over it. I worry sometimes that he will be very OCD as an adult but that concern is gradually going away.
Grayson is doing well but has some issues with his temper. We are working on it but he is still tough to feed as well. His diet is hashbrowns, fruit bars and graham sticks. It's a horrible diet but the ped and research on the net all say it's his age and he will grow out of it. Let's hope so.... He is staying around 20 lbs but I can tell he is growing because his pants are getting shorter and shorter. :-) He is also full of energy and climbs on everything. He is an accident waiting to happen. I almost got sick the other nite because he fell of the computer chair and cut his head while I was trying to cook dinner. One good thing about him being so small is we can't reach up to high yet.
Both boys are working on puzzles during the day. They love them and I really wish that the dog hadn't chewed up most of their Melissa and Doug puzzles. :-( Poor Briley she just can't resist wood objects for chewing. She also loves milk and graham stiks. lol We have lost many a sippy cup and snack cup to the Dog lately. I say it's too many rainy days and not enough time in the yard for her. She also hates when Stephen works late or is out of town. She is like a 4th child in a good way. She is right in the middle of us all the time and the boys love her for it. They can sit on her, roll on her, hug on her, she doesn't mind. She doesn't let them steal her attention and she isn't hard to please. When they go to bed she wants to be in bed with them. lol Unfortunately, they are not old enough for that yet but in time we will let her. She loves G's toddler bed and in the mornings I will catch her sleeping there. When Grayson is done with it we will have to give it to her. She would be thrilled. :-)
These are phone pics so not as great quality but good of the boys. :-)
Braden is doing really well with his home school teacher. :-) He had his first in home speech session on Friday and his teacher said he is so smart. :-) He is really good at getting what he wants without words. I just wish it wasn't hindering him from speaking. I have been really good about making him sign and he has a new sign for movie that he uses often. He is also doing great eating. He will feed himself a grill cheese now. All I have to do is give him a few pieces at a time and he will eat. Now I just need to find a bigger variety. He will also eat sandwich crackers broken in 4's. Which is a big deal because use to if a pc was broken and not cut just perfectly he wouldn't eat it. He would throw the so called imperfect pieces on the floor. lol He is something else but we are so proud of him for getting over his need to everything to be perfect. He even gets his hands dirty now without too much stress over it. I worry sometimes that he will be very OCD as an adult but that concern is gradually going away.
Grayson is doing well but has some issues with his temper. We are working on it but he is still tough to feed as well. His diet is hashbrowns, fruit bars and graham sticks. It's a horrible diet but the ped and research on the net all say it's his age and he will grow out of it. Let's hope so.... He is staying around 20 lbs but I can tell he is growing because his pants are getting shorter and shorter. :-) He is also full of energy and climbs on everything. He is an accident waiting to happen. I almost got sick the other nite because he fell of the computer chair and cut his head while I was trying to cook dinner. One good thing about him being so small is we can't reach up to high yet.
Both boys are working on puzzles during the day. They love them and I really wish that the dog hadn't chewed up most of their Melissa and Doug puzzles. :-( Poor Briley she just can't resist wood objects for chewing. She also loves milk and graham stiks. lol We have lost many a sippy cup and snack cup to the Dog lately. I say it's too many rainy days and not enough time in the yard for her. She also hates when Stephen works late or is out of town. She is like a 4th child in a good way. She is right in the middle of us all the time and the boys love her for it. They can sit on her, roll on her, hug on her, she doesn't mind. She doesn't let them steal her attention and she isn't hard to please. When they go to bed she wants to be in bed with them. lol Unfortunately, they are not old enough for that yet but in time we will let her. She loves G's toddler bed and in the mornings I will catch her sleeping there. When Grayson is done with it we will have to give it to her. She would be thrilled. :-)
These are phone pics so not as great quality but good of the boys. :-)
Monday, November 14, 2011
Wednesday, November 9, 2011
Last week of school and illness
Braden really enjoyed his last week of school and will really miss his friends. He was so eager to go on the last Monday that he literally ran out the door. :-) I hate that he can't go. But he is still going to clinic for therapy. It's scary to get out of the house but this year they just couldn't do homebound. Most of his appts. are either first or second of the day so hopefully he will stay well. We are also happy to report he is getting Synagis. Wahoo!!! Just for this year. The Dr. said she just got lucky with whom she spoke to at the BCBS.
So Monday the 31st Braden went to Taekwondo for his last out of house lesson. Unfortunately, little brother found some who knows who toys and had his mouth all over them before Mommy got back from helping Braden. Long story short we all got a stomach virus later that week. We are just now finally getting over it. It was awful. So later today Braden will have a makeup session with his homebound teacher and tomorrow he will make up all his therapy sessions. He will be very glad to get out of the house and so will we.
So Monday the 31st Braden went to Taekwondo for his last out of house lesson. Unfortunately, little brother found some who knows who toys and had his mouth all over them before Mommy got back from helping Braden. Long story short we all got a stomach virus later that week. We are just now finally getting over it. It was awful. So later today Braden will have a makeup session with his homebound teacher and tomorrow he will make up all his therapy sessions. He will be very glad to get out of the house and so will we.
I'll have some additional pics shortly.... :-) This one was from another pumpkin patch we went to right before lock down.
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Braden
3/11/08 Both eyes open. Taken with the lights down and no flash. He won't open them otherwise.
Braden
2-4-08 Sometimes it's just too hard to get a non blurry shot. He is so small. But, this is a picture without tape on his chin.
Kaleigh
1-21-08 with both eyes open. Mommy had a hard time with the camera so my apologies for the blurred photo.
Braden
1/20/08 Little Kaleigh's photo last nite didn't come out. They had her in the dark so it was difficult to get a good shot. :-(
Kaleigh Grace
1-19-08 She doesn't look so comfortable but they had just flipped her back on her back. She would rather be on her belly.
About Me
- Our little Miracles
- This is the story of an amazing set of twins that were born 16 weeks to soon and their little brother Grayson. Kaleigh Grace who lived an amazing 13 days and we miss daily. Braden our super hero who is now 5. This is our journey in parenting with challenges above and beyond the norm.







