Wednesday, November 30, 2011

My sister's Etsy site and an update on Braden

My sister has a new Etsy site to raise funds for her cancer.  She is adding new items daily.  If you want to buy something that is also helping save a life please visit her site.  She has a nice variety of accessories bags, necklaces, bracelets and more.

http://www.etsy.com/shop/JennaGJay?ref=seller_info

Braden's appt. with Dr. Wootten went well.  Nothing really new to report and he will continue to do vocal cord injections until Dr. Wootten feels Braden is big enough to do surgery for a more permanent fix.  Dr. Adams visit also went well.  He said Braden will no longer need ultrasound check ups on his kidneys.  He also said that Braden will have to have hydroseal surgery on his left side.  Kind of a bummer as it's more surgery but again not anything big and fixable so we are thankful.  The other good news is Dr. Adam can do Braden's hydroseal surgery same day as his vocal cord injection and still go home same day. :-)

Well I have to feed these boys so gotta run.....

Monday, November 28, 2011

Last years Tribute to Hailey

So it's been a year since we had to say good bye to our sweet Hailey dog.  I just wanted to repost this in memory of her.  We miss you Hailey and you will always be in our hearts.



Thanksgiving week...

The boys are getting a little stir crazy being couped up in the house so much.  If it wasn't for the breaks to McDonald's we would go nuts.   Grayson and Braden both are really into climbing everything.  Grayson is very independant yet needy and Braden is pretty much a snuggler and also somewhat independant.  I have to say we are very fortunate the kids like to play by themselves.  But we also have lots for them to do.  They love their toys, games and videos.  We play ball and t-ball alot.  They both enjoy puzzles and sorting shapes is Grayson's favorite.  They also like playing with their Baby E alphabet books.  I may have to get a new set soon because they are pretty worn out.  It is so amazing to watch Braden actually play with his toys and feed himself.  He is doing so great and we are so thankful that being out of school hasn't hindered his progress.  Both boys love their bath time and play really well in the tub. 

This week Pop John and Nana are down to visit.  The boys and Briley were really excited to see them.  We are going to get alot of things done while they are here.  :-)  I have the entire downstairs reorganized and all the toys have been sifted thru to clean out the old and get some new.  We really need toys in this house because the boys spend sooo much time here.  It makes it easier on me as well because I have plenty of things to do with them.  

Braden has two appts. this week.  He has a visit with Dr. Wooten his ENT and Dr. Adams in Urology.  Hoping for good reports and really hoping Dr. Wooten isn't going to scope B while he is awake but I'm afraid he might. :-(  We are still waiting out the hydroseal issue with Braden and we are really hopeful that this visit will tell us no surgery is needed.   Braden has been doing great at therapy and really does well with his homeschool teacher.  I am really excited that he cooperates with Ms. Janet. 

Well the boys are down for a nap and I could use one myself so we will update again tomorrow and let y'all know how the Dr. appts went...

Monday, November 21, 2011

What have we been up to....

Thankfully things have been pretty quite lately.  Not to say the boys have been quite.lol  Just doing really well at the moment.  Braden has been going to therapy in clinic and so far so good.  He really enjoys getting out and I just hope he will stay well.  They have many precautions in place to keep their kids from getting sick.  It also helps that Braden only has therapy one on one and not with other kids. 

Braden is doing really well with his home school teacher.  :-)  He had his first in home speech session on Friday and his teacher said he is so smart. :-)  He is really good at getting what he wants without words.  I just wish it wasn't hindering him from speaking.  I have been really good about making him sign and he has a new sign for movie that he uses often.  He is also doing great eating.  He will feed himself a grill cheese now.  All I have to do is give him a few pieces at a time and he will eat.  Now I just need to find a bigger variety.  He will also eat sandwich crackers broken in 4's.  Which is a big deal because use to if a pc was broken and not cut just perfectly he wouldn't eat it.  He would throw the so called imperfect pieces on the floor. lol  He is something else but we are so proud of him for getting over his need to everything to be perfect.  He even gets his hands dirty now without too much stress over it.  I worry sometimes that he will be very OCD as an adult but that concern is gradually going away. 

Grayson is doing well but has some issues with his temper.  We are working on it but he is still tough to feed as well.  His diet is hashbrowns, fruit bars and graham sticks.  It's a horrible diet but the ped and research on the net all say it's his age and he will grow out of it.  Let's hope so.... He is staying around 20 lbs but I can tell he is growing because his pants are getting shorter and shorter.  :-)  He is also full of energy and climbs on everything.  He is an accident waiting to happen.  I almost got sick the other nite because he fell of the computer chair and cut his head while I was trying to cook dinner.  One good thing about him being so small is we can't reach up to high yet.

Both boys are working on puzzles during the day.  They love them and I really wish that the dog hadn't chewed up most of their Melissa and Doug puzzles. :-(  Poor Briley she just can't resist wood objects for chewing.  She also loves milk and graham stiks. lol   We have lost many a sippy cup and snack cup to the Dog lately.   I say it's too many rainy days and not enough time in the yard for her.  She also hates when Stephen works late or is out of town.  She is like a 4th child in a good way.  She is right in the middle of us all the time and the boys love her for it.  They can sit on her, roll on her, hug on her,  she doesn't mind.  She doesn't let them steal her attention and she isn't hard to please.  When they go to bed she wants to be in bed with them. lol  Unfortunately, they are not old enough for that yet but in time we will let her.  She loves G's toddler bed and in the mornings I will catch her sleeping there.  When Grayson is done with it we will have to give it to her.  She would be thrilled. :-) 

These are phone pics so not as great quality but good of the boys. :-)




Wednesday, November 9, 2011

Last week of school and illness

Braden really enjoyed his last week of school and will really miss his friends.  He was so eager to go on the last Monday that he literally ran out the door. :-)  I hate that he can't go.  But he is still going to clinic for therapy.  It's scary to get out of the house but this year they just couldn't do homebound.  Most of his appts. are either first or second of the day so hopefully he will stay well.  We are also happy to report he is getting Synagis.  Wahoo!!!  Just for this year.  The Dr. said she just got lucky with whom she spoke to at the BCBS. 

So Monday the 31st Braden went to Taekwondo for his last out of house lesson.  Unfortunately, little brother found some who knows who toys and had his mouth all over them before Mommy got back from helping Braden.  Long story short we all got a stomach virus later that week.  We are just now finally getting over it.  It was awful.  So later today Braden will have a makeup session with his homebound teacher and tomorrow he will make up all his therapy sessions.  He will be very glad to get out of the house and so will we. 


I'll have some additional pics shortly.... :-)  This one was from another pumpkin patch we went to right before lock down.

Braden's car

Braden's car

Adjusted age ticker

Lilypie 1st Birthday Ticker

Braden's new Car

Braden's new Car
1/10/08

Braden's new car

Braden's new car
1/10/08

Braden

Braden
Chick Magnet outfit 2

Braden

Braden
Chick Magnet outfit

Braden

Braden
12/13/08

Braden

Braden
12/13/08

Braden

Braden
Mr. Smiley

Braden

Braden
having a better day

Braden

Braden

Braden

Braden
11/2/08

Braden

Braden
11/2/08

Chillin on his boppy

Chillin on his boppy

Trying to take off his mitten

Trying to take off his mitten

Tummy time

Tummy time

Braden

Braden

Braden

Braden
10/3/08

Braden

Braden
Look Mommy I pulled out my nose tube again...

Braden

Braden
10/1/08

10/01/08

10/01/08

Braden

Braden
9/30/08

Braden

Braden
9/30/08

Braden in Camo

Braden in Camo

Braden

Braden
9/12/08

Braden

Braden
9/12/08

Braden

Braden
9/12/08

Braden

Braden
He loves to put his hand under his cheek. So cute...

Braden

Braden
Another photo to show how big Braden is...

Braden

Braden
Please ignore me in these photos. I just wanted you to see how big Braden has gotten.

Braden

Braden
9/10/08

Braden

Braden
8/21/08

Braden playing with his keys

Braden playing with his keys

Braden

Braden
8/17/08

Braden

Braden
8/17/08

Braden and Mommy

Braden and Mommy

Braden and Stephen

Braden and Stephen
8/10/08

Braden and Stephen

Braden and Stephen
8/11/08

Braden

Braden
8/06/08

Braden

Braden
8/6/08

Braden

Braden
8/6/08

Braden

Braden
8/6/08

Braden

Braden
After his bath

Braden

Braden
7/31/08

Braden

Braden
Tummy time

Braden

Braden
Playing in his mirror.

Braden

Braden

Braden

Braden
7/30/08

Braden

Braden
7/30/08

Braden

Braden
7/30/08 Braden checking out his wrist toy.

Braden

Braden
7/20/08 Enjoying his swing

Braden

Braden
7/18/08

Braden

Braden
7/15/08 Braden and his NG tube

Braden

Braden
7/7/08 Braden before his Dr. visit. He was happy this morning.

Braden

Braden
7/7/08 Braden looking at his Daddy taking his photo.

Braden

Braden
7/2/08

Braden

Braden
7/2/08

Braden

Braden
7/2/08 In his BeBe Pod. He's not sure if he like it just yet.

Braden

Braden
6/19/08

Braden

Braden
6/19/08

Braden

Braden
6/18/08

Braden

Braden
6/12/08

Braden

Braden
6/11/08

Braden

Braden
6/9/08

Braden

Braden

Braden

Braden

Braden's new toy

Braden's new toy

Braden and his Daddy

Braden and his Daddy

Braden

Braden
Last nite on his trach nose since we had no power. He did really well.

Braden

Braden
5/31/08

Braden & his wubbanub pacifier

Braden & his wubbanub pacifier

Braden at home

Braden at home

Braden and his tummy time Boppy

Braden and his tummy time Boppy

Braden

Braden
5/29/08

Braden

Braden
5/29/08

Braden

Braden
5/27/08 Getting set up at home.

Braden

Braden
5/27/08 in the van.

Braden

Braden
5/27/08 On our way out of the hospital

Mommy and Braden :-)

Mommy and Braden :-)

Braden and nurse Sherry

Braden and nurse Sherry

Braden's home coming

Braden's home coming
5/27/08 In his carseat. :-)

Braden

Braden
5/24/08

Braden

Braden
5/23/08

Braden

Braden
5/22/08 Braden with Nurse Patty

Braden

Braden
5/20/08

Braden

Braden
5/20/08 Braden and his nurse Stacy

Braden

Braden
5/19/08

Braden

Braden
In one of Missy's outfits. Can you see how big he is.. in his newborn clothes.

Braden

Braden
With Nurse Rachel. He is not mad at her he's got gas. :-)

Braden

Braden
5/17/08

Braden

Braden
5/17/08

Braden

Braden
5/16/08

Braden

Braden
5/16/08

Braden

Braden
5/16/08

Braden

Braden
5/16/08

Braden

Braden
5/14/08

Braden

Braden
5/14/08

Braden

Braden
5/14/08

Braden

Braden
5/14/08

Braden

Braden
5/14/08

Braden

Braden
5/14/08

Braden

Braden
5/14/08

5/11/08

5/11/08
Braden

Braden

Braden
5/11/08

Braden

Braden
5/10/08

Braden

Braden
5/10/08

Braden

Braden
5/10/08

Braden

Braden
5/10/08 4th months old today

Braden

Braden
5/7/08

Braden

Braden
5/7/08

Braden

Braden
5/7/08

Braden

Braden
5/4/08

Braden

Braden
5/4/08 Dressed up in his puppy dog attire.

Braden

Braden
5/4/08 Look at those big beautiful eyes.

Braden

Braden
5/4/08

Braden

Braden
5/4/08 Taking his bottle like a big boy.

Braden

Braden
5/4/08

Braden

Braden
5/4/08 In cousin Riley's lightning outfit.

Braden

Braden
5/3/08

Braden

Braden
5/3/08

Braden

Braden
5/3/08

Braden

Braden
5/3/08

Braden

Braden
5/3/08

Braden

Braden
5/1/08

Braden

Braden
5/1/08

Braden

Braden
5/1/08

BRADEN

BRADEN
5/1/08

BRADEN

BRADEN
5/1/08

Braden

Braden
4/30/08

Braden

Braden
4/30/08

Braden

Braden
4/29/08

Braden

Braden
4/29/08

Braden

Braden
4/28/08

Braden

Braden
4/28/08

Braden

Braden
4/26/08

Braden

Braden
4/26/08

Braden

Braden
4/26/08 Frog feet pajamas from Ashley.

Braden & Family

Braden & Family
4/26/08

Braden & Family

Braden & Family
4/26/08

Braden

Braden
4/26/08

Braden

Braden
4/26/08

Braden

Braden
4/25/08

Braden

Braden
4/25/08

Braden

Braden
4/24/08 In his bouncy seat.

Braden

Braden
4/24/08

Braden

Braden
4/22/08

Braden

Braden
4/22/08

Braden

Braden
4/22/08

Braden

Braden
4/21/08

Braden

Braden
4/21/08 Getting a break from his bottle

Braden

Braden
4/20/08

Braden

Braden
4/20/08 King Braden in his frog outfit

Braden

Braden
4/19/08

Braden

Braden
4/19/08

Braden

Braden
4/19/08

Braden

Braden
4/19/08 Taking his bottle

Braden

Braden
4/19/08 Wide awake after his feeding.

Braden

Braden
4/18/08

Braden

Braden
4/18/08

Braden

Braden
4/15/08 In his big boy bed

Braden

Braden
4/15/08

Braden

Braden
4/13/08 Look both eyes. :-)

Braden

Braden
With both eyes open 4/13/08

Braden

Braden
4/12/08

Braden

Braden
4/11/08

Braden

Braden
4/11/08

Braden

Braden
4/11/08

Braden

Braden
4/10/08

Braden

Braden
4/10/08

Braden

Braden
4/10/08

Braden

Braden
4/9/08

Braden

Braden
4/9/08

Braden

Braden
4/7/08

Braden

Braden
4/7/08 still at Vandy

Braden

Braden
4/2/08

Braden

Braden
4/2/08

Braden

Braden
4/2/08 Daddy holding Braden for the first time.

Braden

Braden
4/1/08 Dino outfit and blanket

Braden

Braden
4/1/08

Braden

Braden
Braden and Nurse Missy who sang a very lovely song to him tonite.

Braden

Braden
4/1/08

Braden

Braden
4/1/08

Braden

Braden
3/31/08

Braden

Braden
3/31/08

Braden

Braden
3/31/08

Braden

Braden
3/31/08 Braden is now 36 weeks gestational age. He will be 3 months old on April 10th.

Braden

Braden
3/31/08

Braden

Braden
3/31/08 Sleeping so peacefully

Braden

Braden
3/31/08 Momma holding Braden

Braden

Braden
3/31/08 He's telling them to be quiet or he's thinking. You decide.

Braden

Braden
3/31/08 Patty pics

Braden

Braden
3/28/08 Such a cutie :-)

Braden

Braden
3/28/08 Braden's alligator apparel

Braden

Braden
3/28/08 The Green bean bag alien from Roswell.

Braden

Braden
3/25/08

Braden

Braden
3/25/08

Braden

Braden
3/25/08

Braden

Braden
3/25/08

Braden

Braden
3/24/08

FEEDJIT Live Traffic Feed

Braden

Braden
3/24/08

Braden

Braden
3/24/08

Braden in Camo

Braden in Camo
3/23/08

Braden in Camo

Braden in Camo
3/23/08

Braden

Braden
3/23/08

Braden

Braden
3/23/08

Braden

Braden
3/20/08 Look how big he's getting.

Braden's new isolette

Braden's new isolette
3/18/08

Braden's new Isolette

Braden's new Isolette
3/18/08

Braden

Braden
3/16/08

Braden

Braden
3/16/08

Braden

Braden
3/16/08 Photo from last nite while Mommy held Braden

Braden

Braden
3/15/08

Braden

Braden
3/15/08

Braden

Braden
3/14/08

Braden

Braden
3/14/08

Braden

Braden
3/14/08

Braden

Braden
3/14/08 This duck is not as big as it looks.

Braden

Braden
3/14/08

Braden

Braden
3/12/08

Braden

Braden
3/12/08

Braden

Braden
3/11/08 New bedding..

Braden

Braden
3/11/08 Both eyes open. Taken with the lights down and no flash. He won't open them otherwise.

Braden

Braden
3/11/08

Braden

Braden
3/11/08 Doesn't he look bigger?

Braden

Braden
3/11/08

Braden

Braden
3/10/08 2 months old today. :-)

Braden

Braden
3/9/08

Braden

Braden
3/9/08

Braden

Braden
3/9/08

Family photo

Family photo
3/7/08

Braden

Braden
3/7/08 Photo by Aunt Paula

Braden

Braden
3/7/08 Our first family photo

Braden

Braden
3/7/08 Braden's tooth. Photo courtesy of Nurse Patti

Braden

Braden
3/7/08

Braden

Braden
3/6/08

Braden

Braden
3/6/08

Braden

Braden
3/6/08

Braden

Braden
3/5/08

Braden

Braden
3/5/08 Photo by Aunt Paula

Braden

Braden
3/3/08 With his mittens and hat to warm him up after his bath.

Braden

Braden
3/3/08

Braden

Braden
3/3/08

Braden

Braden
3/3/08

Braden

Braden
3/3/08

Braden

Braden
2/29/08

Braden

Braden
2/29/08

Braden

Braden
2/29/08

Braden

Braden
2/29/08

Braden

Braden
2/28/08

Braden

Braden
2/27/08

Braden

Braden
2/27/08

Braden

Braden
2/27/08

Braden

Braden
2/26/08

Braden

Braden
2/26/08

Braden

Braden
2/05/08

Braden

Braden
2/25/08

Braden

Braden
2/22/08 Evening visit

Braden

Braden
2/22/08 Daddy's a little better at taking my photo.

Braden

Braden
2/22/08 This is what happens when Mommy forgets to turn off the flash.

Braden

Braden
2/18/08 You can see he is still very little even though he's reached 2 lbs.

Braden

Braden
2/18/08 Look zero tubes :-)

Braden

Braden
2/18/08

Braden

Braden
2/16/08 Is that a smile on his little face:-)

Braden

Braden
2/16/08

Braden

Braden
2/16/08

Braden

Braden
2/16/08

Braden

Braden
2/16/08 Still off the vent what a trooper.

Braden

Braden
2/14/08

Braden

Braden
2/14/08

Braden

Braden
2/12/08

Braden

Braden
2/11/08

Braden

Braden
2/11/08 Braden on his camo and frogs blanket. Very Cute.

Braden

Braden
2/11/08

Braden

Braden
2/11/08

Braden

Braden
2/7/08

Braden

Braden
2/6/08

Braden

Braden
On his own blue bunny blanket given to him by Judy G.. :-)

Braden

Braden
2/6/08 with his purple passy

Braden

Braden
2-4-08 Sometimes it's just too hard to get a non blurry shot. He is so small. But, this is a picture without tape on his chin.

Braden

Braden
2/2/08

Braden

Braden
2/2/08

Braden

Braden

Braden

Braden

Braden

Braden
2-1-08

Braden

Braden
Our little superman 2-1-08

Braden

Braden
1-29-08

Braden's new hat

Braden's new hat
1/29/08

Braden

Braden
1-28-08

Braden

Braden
1-28-08

Braden

Braden
1-25-08

Braden

Braden
1-25-08

Braden

Braden
1-21-08 All I want to do is sleep.

Kaleigh

Kaleigh
1-21-08 Both eyes open and a non blurry picture. Thank you Daddy.

Kaleigh

Kaleigh
1-21-08 with both eyes open. Mommy had a hard time with the camera so my apologies for the blurred photo.

Braden

Braden
1/20/08 Little Kaleigh's photo last nite didn't come out. They had her in the dark so it was difficult to get a good shot. :-(

Braden John

Braden John
1-19-08 Still sleeping away and really tired but doing very well.

Kaleigh Grace

Kaleigh Grace
1-19-08 She doesn't look so comfortable but they had just flipped her back on her back. She would rather be on her belly.

Kaleigh

Kaleigh
1-19-08 Good pic of her little face.

Braden

Braden
1-19-08 resting peacefully from a hard day of breathing on his own.

Braden

Braden
1-18-08 with his purple passy

Kaleigh

Kaleigh
1-18-08 evening

Kaleigh 1-18-08

Kaleigh 1-18-08
Our little hero has showed us that she is a fighter.

Braden

Braden
1-18-08 first day off his ventilator. :-)

Kaleigh 1-17-08

Kaleigh 1-17-08
Resting so she can get stronger.

Braden 1-17-08

Braden 1-17-08
Has his lamp off today. So we can see his cute little face.

Kaleigh

Kaleigh
Laying on her pink gingham blanket. They just changed out that morning.

Braden

Braden
That's Mommy's hand on Braden's little head. In an effort to calm him.

Kaleigh

Kaleigh
They had Kaleigh on her side today. What a large diaper she has on.

Braden

Braden
Loves to sleep on his tummy. Kaleigh likes it too.

Braden

Braden
1/14/08 Stretched out and relaxed

Kaleigh

Kaleigh
1/14/08 crinkling her forhead

kaleigh grace

kaleigh grace
1/12/08

Braden John

Braden John
1/12/08

About Me

My Photo
This is the story of an amazing set of twins that were born 16 weeks to soon and their little brother Grayson. Kaleigh Grace who lived an amazing 13 days and we miss daily. Braden our super hero who is now 5. This is our journey in parenting with challenges above and beyond the norm.