Cannot believe it is May already. Braden's last day of pre K is May 21st. He has been loving school and doing soooo well. They told us since he did not regress over the holidays during the winter months he will probably not qualify for summer services this year. He is also doing so well he may get to be in the step before Kindergarten class next fall. It's crazy to even think about it. I know next year is going to be hard. G will start his first school season and Braden will be one step closer to a full day of school. They are growing so fast.
This week Grayson will have his full eval with TEIS. It will be interesting to see how that one goes. I don't really have an expectation. We are only doing this as a precaution to make sure G isn't having some difficulties on a minor scale at best. Either way it won't hurt to get him some help if that will keep him from being behind a few years from now.
G is now in a toddler bed. It is not without drama. He is fighting us on the new bed depending on how tired he is... less tired fights longer. Less tired... well you get the idea. He is also allowed to freely go up and down the stairs. This is not without reservation but he is actually doing very well and Braden is starting to walk a little more often up and down as well. It's a life saver for me. They are just way to heavy to be carrying up and down at this point. I need to save my back, my knees, my arms... lol It's worth the added stress of watching them like a hawk. Over all it's best for their development as well.
Braden is back to NO self feeding. But he does eat some at school and will feed himself snacks so overall not too bad. I have found that following him around and feeding him bites gets more food and calories in for the day. Spoiling him I guess but when you tube feed your kid you'll do just about anything to get the necessary calories in. It's just how it is and ALL of us who have tubie kiddos do things like this... it's just the way we have to live. It's often misunderstood by others because they are under the assumption that if they are hungry they will eat. Well I have a full termer with no tube that doesn't live by these rules so it's painfully apparent to me that not all kids work under the same rule. So many are quick to give advice but it's just because they have had a different experience. I usually give grace to those that don't understand as they don't live in my shoes so they are well intended. Sometimes others actually do think or say something I may not have tried so I always try to appreciate that they are just trying to help. Both of our kiddos are just too busy to eat. They don't want to slow down just like those kids that are suppose to be potty trained have accidents occassionally. I'm sure ours will be extremely difficult to potty train as neither of them cares much if they are wet and they are both as stubborn as they come... But we will attempt a huge try once school is out. I remember not wanting to take time outs to pee and I remember my Mom telling me that when we were in public I'd just assume pee my pants than use a dirty restroom. lol So apparently they come by their stubborn ways partly because of their Mother. lol As well as my insisting not to eat what I refused to eat. I remember going hungry many times as a child because my parents used the policy you eat what we eat. I didn't like white beans and I never ate them. I didn't like liver and I never ate it. You can ask my Mom or my sister's they will tell you I refused to eat and that meant I'd go to bed hungry at a very young age. That's by no means knocking my parents. But I do see why our boys are so complicated.
The boys are napping so I guess I should take advantage of taking one myself.
Monday, May 7, 2012
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Braden
3/11/08 Both eyes open. Taken with the lights down and no flash. He won't open them otherwise.
Braden
2-4-08 Sometimes it's just too hard to get a non blurry shot. He is so small. But, this is a picture without tape on his chin.
Kaleigh
1-21-08 with both eyes open. Mommy had a hard time with the camera so my apologies for the blurred photo.
Braden
1/20/08 Little Kaleigh's photo last nite didn't come out. They had her in the dark so it was difficult to get a good shot. :-(
Kaleigh Grace
1-19-08 She doesn't look so comfortable but they had just flipped her back on her back. She would rather be on her belly.
About Me
- Our little Miracles
- This is the story of an amazing set of twins that were born 16 weeks to soon and their little brother Grayson. Kaleigh Grace who lived an amazing 13 days and we miss daily. Braden our super hero who is now 4. This is our journey in parenting with challenges above and beyond the norm.



1 comment:
You are doing great work. It's hard to let them just go up and down the stairs on their own. Or do any bigger kid stuff on their own.
The feeding stuff is pretty normal. Though I sometimes wonder if my younger acts the way his bigger sister does because of the attention she gets over the feeding. We'll see as things improve I guess.
Love hearing updates on your boys.
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