We have been busy as usual. We have a new schedule for the summer. Braden has all of his therapies private and through the school system on Weds. Poor kid but I have to say he survived his first week just fine. He took a long nap but did great. Grayson's TEIS teacher session will be on Friday's. He met his teacher this past Friday. He liked her ok enough to give her five and repeatedly told her "Bye" because he wanted her to leave. He's so polite. ha!!! She also offered him his favorite M&M's and he refused to eat one. Yes he is stubborn just like his brother. Oh boy!
We had an appt. with Dr. Wootten recently and he realized that Braden's vocal cord injection really isn't giving him the voice he needs. We have noticed that he isn't as loud as he was the first injection but Stephen and I tend to be overly positive at times. This is one of those times where we think because we can hear B he is making sound. But really he is just pushing air. We still can't hear him cry or laugh really.... just a whisper. We are tuned into it so we feel it's progress but realize now that is not the sound Dr. W is looking for... he wants more for him. So next Sept he is going to be more aggressive with B's injection and see if he can produce sound to hear an actual laugh or cry out of B. Hope it works.
I have been looking into swim lessons for the boys but haven't received any return calls. :-( So I'm not sure if it's too late in the summer or if they just can't accommodate us for our situation. I have to be there in the water for G and I have to have them both in the same class to do the lessons. If anyone knows of a good program that still has availability please let me know.
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- Our little Miracles
- This is the story of an amazing set of twins that were born 16 weeks to soon and their little brother Grayson. Kaleigh Grace who lived an amazing 13 days and we miss daily. Braden our super hero who is now 5. This is our journey in parenting with challenges above and beyond the norm.