Monday, February 27, 2012

A little update

Friday both Stephen and Braden were having drainage. :-(   So was Grayson but not as badly.  Then Grayson decided to get the nasty coughing all nite with yellow snotties on Sat morning and I just knew he had to have an ear infection.  Last nite Braden had the ugly coughing all nite but today after seeing the Doctor they seem pretty good.  Much to my surprise neither has an ear infection.  Just the usual redness that comes with a cold virus.  Great news is Braden seems to be handling being sick better than Grayson. lol  I never thought that would happen EVER.  I guess it's his huge growth spurt that rivals any he has had in the past.  He is a whopping 37 and 1/2 inches tall and weighs 33 lbs 4 ozs.  That's a no clothing weight too. :-)  So much to be proud of... Grayson is also growing.  He weighed in at 22 lbs 4 ozs.  Funny they stay exactly 10 pounds apart now with every weigh in.   Grayson is wearing 18-24 month clothing and seems tall.  But we did not get a height on him today.  He turns 2 in May.  Wow!!! can you believe it?  We will get a new height and weight on him with his 2 year Ped. checkup. 

We have a rough draft on our March of Dimes T-shirts and I just wanted to remind everyone that if you would like a shirt please let me know asap.  nnyl1806@comcast.net.  We will need to have our order completed by the 1st week in March.  I want to make sure they come in on time for the walk.  That is for those walking and if your not you can still buy a t-shirt to support the cause.  Thanks so much in advance to all who support this year's giving back to other preemies and their families.  We are so blessed and thankful for our Braden and all the new technology and research that has brought him farther than we ever imagined he might go. 

Monday, February 20, 2012

March of Dimes T-shirts

Hello everyone - If anyone would like a T-shirt for this years March of dimes walk please email us your size and number of t-shirts wanted.  The shirts will range from $11 to $13.  Youth sizes may be a dollar or so less will have to check.  Either way part of the proceeds will go as a donation to MOB.  If you are not walking you can still buy a T-shirt.  This year we are doing a templated custom shirt.  So it will have a picture of Braden when he was born and one of his most recent photos. :-)  It's really nice and will be a light blue with white and black lettering.  My email to order is nnyl1806@comcast.net or if you are on Facebook please feel free to send me a message or post on my wall.  As always thank you for your support. 

We had a wonderful week last week.  Nana visited and we were all able to get haircuts and do alot of errands that can't be done without help. We also had to buy a new washer as our one from just 4 years ago died. :-(  We had to use Nana's washer while trying to find a new one.  Thankful we didn't have to go to the laundry mat.  The boys are about the same. Growing like weeds and becoming more and more active daily.  They are really keeping us busy.  Especially right before bedtime.  From 5 to 8 pm they literally wear us both out.  lol  Add in the dog and we are struggling just to eat dinner.  Sometimes we just have to wait till they are in bed.  We often say how we never could imagine what Braden is able to do today.  So despite all the craziness we are VERY thankful. 

Sunday, February 5, 2012

New growth

Braden is almost 32 lbs if not already. His new feeding plan of 1300-1500 calories per day is packing on the pounds. In fact he isn't meeting that goal daily. He gets 1200 to 1300. I haven't pushed for more because this time last month he was 30 lbs 4 oz. A significant jump for not being on a push for maximum growth. So I have emailed his nutritionist to see if she wants to make any adjustments. I am still unable to get Braden to drink anything but water and I am still having trouble with new foods. But we are making great progress with using a fork. Braden is also brushing his teeth by himself. Of course as all Mom's do I go behind him to make sure it's a good enough job but we are very proud of him. He has made huge strides towards independence. He has never been as I call Grayson a go getter. He usually needs prompting for task and has been hesitant to follow directions. However lately he has exploded with motivation. He climbs into his bed consistently by himself. He is actually helping get in and out of his carseat. He runs down the hill when we walk out of the house. He comes to you when you ask him too. He actually strategically plans to get to what he wants by climbing counters, chairs, shelves. He has learned some from his brother but also I think he has just had another one of his bursts of development. We love those times because it's so sudden and encouraging to see him just a little closer to catching up with his peers. He has also been asking daily to watch his Elmo potty time video. So I thought I would do a trial run this week. I have his charts, stickers, potty seats, big boy pants and M&M's ready to begin. I do not have any expectations as I totally don't expect to accomplish anything but awareness and some new level of understanding. The real training will begin this summer when we can train more outside. But I do have towels couch covers and things in place to keep accidents from ruining our house. Our carpets have already seen one family with young kids so they really won't look any worse from us. I know for sure Grayson is not ready so we won't be working with him just yet. I would love for Braden to be trained before G. I just think it would be easier on us. This trial run will help me especially to know if I have a good plan in place and if Braden gets excited about the reward system. It will also help me figure out how his schedule works. Tube fed kiddos are a lot different to work with than non tube fed. They pee a lot more is one difference and that in itself complicates things.

Grayson is doing good too. He loves to dance and is a big fan of music. He will crawl in your lap and clap when he wants you to sing "when your happy and you know it". He likes to stump his feet and march in circles. He loves big knob puzzles and he loves the fridge magnets from leap frog that are the alphabet. He plays with them on the art easel. He also does really well drawing his up and down lines on the chalkboard. We have enjoyed two gifts that the boys love. Their animal baby mags and their high five mags. Both have short stories and activities. We read stories before bed and we have done several of the activities during the day. We have enjoyed activities like soaring like an eagle and imitating motions like a kite.

I will be mentioning March of dimes in every post till the walk. We really encourage your support and thank you for the continued support you've given Braden for the past 4 years. Please see the previous post for information on how to participate and a link to our March for babies web page.

Friday, February 3, 2012

March for Babies - Our babies please :-)

It's that time of year again.  The Nashville March for Babies is April 22nd at Centinnel park.  Would you like to donate to a great cause?  Would you like to join our team to walk in honor of our Super Hero Braden and in the memory of our precious daughter Kaleigh?  Here is the link to sign up or donate or both today. :-)  Your support is GREATLY appreciated.  We love this time of year.  It's our chance to give back and help others save their preemie babies and help prevent premature birth all together. 

http://www.marchforbabies.org/personal_page.asp?pp=3596480&ct=4&w=5236618&u=bradenandkaleigh

A pic from 2011 walk.  What a gorgeous day it was and what an awesome event and turn out.  If you would like a T-shirt this year please let me know.  Part of the proceeds go towards the March of Dimes and we are looking into custom shirts this year.  If interested please email me at nnyl1806@comcast.net.  Thanks again for everyone's support. 

Braden's car

Braden's car

Adjusted age ticker

Lilypie 1st Birthday Ticker

Braden's new Car

Braden's new Car
1/10/08

Braden's new car

Braden's new car
1/10/08

Braden

Braden
Chick Magnet outfit 2

Braden

Braden
Chick Magnet outfit

Braden

Braden
12/13/08

Braden

Braden
12/13/08

Braden

Braden
Mr. Smiley

Braden

Braden
having a better day

Braden

Braden

Braden

Braden
11/2/08

Braden

Braden
11/2/08

Chillin on his boppy

Chillin on his boppy

Trying to take off his mitten

Trying to take off his mitten

Tummy time

Tummy time

Braden

Braden

Braden

Braden
10/3/08

Braden

Braden
Look Mommy I pulled out my nose tube again...

Braden

Braden
10/1/08

10/01/08

10/01/08

Braden

Braden
9/30/08

Braden

Braden
9/30/08

Braden in Camo

Braden in Camo

Braden

Braden
9/12/08

Braden

Braden
9/12/08

Braden

Braden
9/12/08

Braden

Braden
He loves to put his hand under his cheek. So cute...

Braden

Braden
Another photo to show how big Braden is...

Braden

Braden
Please ignore me in these photos. I just wanted you to see how big Braden has gotten.

Braden

Braden
9/10/08

Braden

Braden
8/21/08

Braden playing with his keys

Braden playing with his keys

Braden

Braden
8/17/08

Braden

Braden
8/17/08

Braden and Mommy

Braden and Mommy

Braden and Stephen

Braden and Stephen
8/10/08

Braden and Stephen

Braden and Stephen
8/11/08

Braden

Braden
8/06/08

Braden

Braden
8/6/08

Braden

Braden
8/6/08

Braden

Braden
8/6/08

Braden

Braden
After his bath

Braden

Braden
7/31/08

Braden

Braden
Tummy time

Braden

Braden
Playing in his mirror.

Braden

Braden

Braden

Braden
7/30/08

Braden

Braden
7/30/08

Braden

Braden
7/30/08 Braden checking out his wrist toy.

Braden

Braden
7/20/08 Enjoying his swing

Braden

Braden
7/18/08

Braden

Braden
7/15/08 Braden and his NG tube

Braden

Braden
7/7/08 Braden before his Dr. visit. He was happy this morning.

Braden

Braden
7/7/08 Braden looking at his Daddy taking his photo.

Braden

Braden
7/2/08

Braden

Braden
7/2/08

Braden

Braden
7/2/08 In his BeBe Pod. He's not sure if he like it just yet.

Braden

Braden
6/19/08

Braden

Braden
6/19/08

Braden

Braden
6/18/08

Braden

Braden
6/12/08

Braden

Braden
6/11/08

Braden

Braden
6/9/08

Braden

Braden

Braden

Braden

Braden's new toy

Braden's new toy

Braden and his Daddy

Braden and his Daddy

Braden

Braden
Last nite on his trach nose since we had no power. He did really well.

Braden

Braden
5/31/08

Braden & his wubbanub pacifier

Braden & his wubbanub pacifier

Braden at home

Braden at home

Braden and his tummy time Boppy

Braden and his tummy time Boppy

Braden

Braden
5/29/08

Braden

Braden
5/29/08

Braden

Braden
5/27/08 Getting set up at home.

Braden

Braden
5/27/08 in the van.

Braden

Braden
5/27/08 On our way out of the hospital

Mommy and Braden :-)

Mommy and Braden :-)

Braden and nurse Sherry

Braden and nurse Sherry

Braden's home coming

Braden's home coming
5/27/08 In his carseat. :-)

Braden

Braden
5/24/08

Braden

Braden
5/23/08

Braden

Braden
5/22/08 Braden with Nurse Patty

Braden

Braden
5/20/08

Braden

Braden
5/20/08 Braden and his nurse Stacy

Braden

Braden
5/19/08

Braden

Braden
In one of Missy's outfits. Can you see how big he is.. in his newborn clothes.

Braden

Braden
With Nurse Rachel. He is not mad at her he's got gas. :-)

Braden

Braden
5/17/08

Braden

Braden
5/17/08

Braden

Braden
5/16/08

Braden

Braden
5/16/08

Braden

Braden
5/16/08

Braden

Braden
5/16/08

Braden

Braden
5/14/08

Braden

Braden
5/14/08

Braden

Braden
5/14/08

Braden

Braden
5/14/08

Braden

Braden
5/14/08

Braden

Braden
5/14/08

Braden

Braden
5/14/08

5/11/08

5/11/08
Braden

Braden

Braden
5/11/08

Braden

Braden
5/10/08

Braden

Braden
5/10/08

Braden

Braden
5/10/08

Braden

Braden
5/10/08 4th months old today

Braden

Braden
5/7/08

Braden

Braden
5/7/08

Braden

Braden
5/7/08

Braden

Braden
5/4/08

Braden

Braden
5/4/08 Dressed up in his puppy dog attire.

Braden

Braden
5/4/08 Look at those big beautiful eyes.

Braden

Braden
5/4/08

Braden

Braden
5/4/08 Taking his bottle like a big boy.

Braden

Braden
5/4/08

Braden

Braden
5/4/08 In cousin Riley's lightning outfit.

Braden

Braden
5/3/08

Braden

Braden
5/3/08

Braden

Braden
5/3/08

Braden

Braden
5/3/08

Braden

Braden
5/3/08

Braden

Braden
5/1/08

Braden

Braden
5/1/08

Braden

Braden
5/1/08

BRADEN

BRADEN
5/1/08

BRADEN

BRADEN
5/1/08

Braden

Braden
4/30/08

Braden

Braden
4/30/08

Braden

Braden
4/29/08

Braden

Braden
4/29/08

Braden

Braden
4/28/08

Braden

Braden
4/28/08

Braden

Braden
4/26/08

Braden

Braden
4/26/08

Braden

Braden
4/26/08 Frog feet pajamas from Ashley.

Braden & Family

Braden & Family
4/26/08

Braden & Family

Braden & Family
4/26/08

Braden

Braden
4/26/08

Braden

Braden
4/26/08

Braden

Braden
4/25/08

Braden

Braden
4/25/08

Braden

Braden
4/24/08 In his bouncy seat.

Braden

Braden
4/24/08

Braden

Braden
4/22/08

Braden

Braden
4/22/08

Braden

Braden
4/22/08

Braden

Braden
4/21/08

Braden

Braden
4/21/08 Getting a break from his bottle

Braden

Braden
4/20/08

Braden

Braden
4/20/08 King Braden in his frog outfit

Braden

Braden
4/19/08

Braden

Braden
4/19/08

Braden

Braden
4/19/08

Braden

Braden
4/19/08 Taking his bottle

Braden

Braden
4/19/08 Wide awake after his feeding.

Braden

Braden
4/18/08

Braden

Braden
4/18/08

Braden

Braden
4/15/08 In his big boy bed

Braden

Braden
4/15/08

Braden

Braden
4/13/08 Look both eyes. :-)

Braden

Braden
With both eyes open 4/13/08

Braden

Braden
4/12/08

Braden

Braden
4/11/08

Braden

Braden
4/11/08

Braden

Braden
4/11/08

Braden

Braden
4/10/08

Braden

Braden
4/10/08

Braden

Braden
4/10/08

Braden

Braden
4/9/08

Braden

Braden
4/9/08

Braden

Braden
4/7/08

Braden

Braden
4/7/08 still at Vandy

Braden

Braden
4/2/08

Braden

Braden
4/2/08

Braden

Braden
4/2/08 Daddy holding Braden for the first time.

Braden

Braden
4/1/08 Dino outfit and blanket

Braden

Braden
4/1/08

Braden

Braden
Braden and Nurse Missy who sang a very lovely song to him tonite.

Braden

Braden
4/1/08

Braden

Braden
4/1/08

Braden

Braden
3/31/08

Braden

Braden
3/31/08

Braden

Braden
3/31/08

Braden

Braden
3/31/08 Braden is now 36 weeks gestational age. He will be 3 months old on April 10th.

Braden

Braden
3/31/08

Braden

Braden
3/31/08 Sleeping so peacefully

Braden

Braden
3/31/08 Momma holding Braden

Braden

Braden
3/31/08 He's telling them to be quiet or he's thinking. You decide.

Braden

Braden
3/31/08 Patty pics

Braden

Braden
3/28/08 Such a cutie :-)

Braden

Braden
3/28/08 Braden's alligator apparel

Braden

Braden
3/28/08 The Green bean bag alien from Roswell.

Braden

Braden
3/25/08

Braden

Braden
3/25/08

Braden

Braden
3/25/08

Braden

Braden
3/25/08

Braden

Braden
3/24/08

FEEDJIT Live Traffic Feed

Braden

Braden
3/24/08

Braden

Braden
3/24/08

Braden in Camo

Braden in Camo
3/23/08

Braden in Camo

Braden in Camo
3/23/08

Braden

Braden
3/23/08

Braden

Braden
3/23/08

Braden

Braden
3/20/08 Look how big he's getting.

Braden's new isolette

Braden's new isolette
3/18/08

Braden's new Isolette

Braden's new Isolette
3/18/08

Braden

Braden
3/16/08

Braden

Braden
3/16/08

Braden

Braden
3/16/08 Photo from last nite while Mommy held Braden

Braden

Braden
3/15/08

Braden

Braden
3/15/08

Braden

Braden
3/14/08

Braden

Braden
3/14/08

Braden

Braden
3/14/08

Braden

Braden
3/14/08 This duck is not as big as it looks.

Braden

Braden
3/14/08

Braden

Braden
3/12/08

Braden

Braden
3/12/08

Braden

Braden
3/11/08 New bedding..

Braden

Braden
3/11/08 Both eyes open. Taken with the lights down and no flash. He won't open them otherwise.

Braden

Braden
3/11/08

Braden

Braden
3/11/08 Doesn't he look bigger?

Braden

Braden
3/11/08

Braden

Braden
3/10/08 2 months old today. :-)

Braden

Braden
3/9/08

Braden

Braden
3/9/08

Braden

Braden
3/9/08

Family photo

Family photo
3/7/08

Braden

Braden
3/7/08 Photo by Aunt Paula

Braden

Braden
3/7/08 Our first family photo

Braden

Braden
3/7/08 Braden's tooth. Photo courtesy of Nurse Patti

Braden

Braden
3/7/08

Braden

Braden
3/6/08

Braden

Braden
3/6/08

Braden

Braden
3/6/08

Braden

Braden
3/5/08

Braden

Braden
3/5/08 Photo by Aunt Paula

Braden

Braden
3/3/08 With his mittens and hat to warm him up after his bath.

Braden

Braden
3/3/08

Braden

Braden
3/3/08

Braden

Braden
3/3/08

Braden

Braden
3/3/08

Braden

Braden
2/29/08

Braden

Braden
2/29/08

Braden

Braden
2/29/08

Braden

Braden
2/29/08

Braden

Braden
2/28/08

Braden

Braden
2/27/08

Braden

Braden
2/27/08

Braden

Braden
2/27/08

Braden

Braden
2/26/08

Braden

Braden
2/26/08

Braden

Braden
2/05/08

Braden

Braden
2/25/08

Braden

Braden
2/22/08 Evening visit

Braden

Braden
2/22/08 Daddy's a little better at taking my photo.

Braden

Braden
2/22/08 This is what happens when Mommy forgets to turn off the flash.

Braden

Braden
2/18/08 You can see he is still very little even though he's reached 2 lbs.

Braden

Braden
2/18/08 Look zero tubes :-)

Braden

Braden
2/18/08

Braden

Braden
2/16/08 Is that a smile on his little face:-)

Braden

Braden
2/16/08

Braden

Braden
2/16/08

Braden

Braden
2/16/08

Braden

Braden
2/16/08 Still off the vent what a trooper.

Braden

Braden
2/14/08

Braden

Braden
2/14/08

Braden

Braden
2/12/08

Braden

Braden
2/11/08

Braden

Braden
2/11/08 Braden on his camo and frogs blanket. Very Cute.

Braden

Braden
2/11/08

Braden

Braden
2/11/08

Braden

Braden
2/7/08

Braden

Braden
2/6/08

Braden

Braden
On his own blue bunny blanket given to him by Judy G.. :-)

Braden

Braden
2/6/08 with his purple passy

Braden

Braden
2-4-08 Sometimes it's just too hard to get a non blurry shot. He is so small. But, this is a picture without tape on his chin.

Braden

Braden
2/2/08

Braden

Braden
2/2/08

Braden

Braden

Braden

Braden

Braden

Braden
2-1-08

Braden

Braden
Our little superman 2-1-08

Braden

Braden
1-29-08

Braden's new hat

Braden's new hat
1/29/08

Braden

Braden
1-28-08

Braden

Braden
1-28-08

Braden

Braden
1-25-08

Braden

Braden
1-25-08

Braden

Braden
1-21-08 All I want to do is sleep.

Kaleigh

Kaleigh
1-21-08 Both eyes open and a non blurry picture. Thank you Daddy.

Kaleigh

Kaleigh
1-21-08 with both eyes open. Mommy had a hard time with the camera so my apologies for the blurred photo.

Braden

Braden
1/20/08 Little Kaleigh's photo last nite didn't come out. They had her in the dark so it was difficult to get a good shot. :-(

Braden John

Braden John
1-19-08 Still sleeping away and really tired but doing very well.

Kaleigh Grace

Kaleigh Grace
1-19-08 She doesn't look so comfortable but they had just flipped her back on her back. She would rather be on her belly.

Kaleigh

Kaleigh
1-19-08 Good pic of her little face.

Braden

Braden
1-19-08 resting peacefully from a hard day of breathing on his own.

Braden

Braden
1-18-08 with his purple passy

Kaleigh

Kaleigh
1-18-08 evening

Kaleigh 1-18-08

Kaleigh 1-18-08
Our little hero has showed us that she is a fighter.

Braden

Braden
1-18-08 first day off his ventilator. :-)

Kaleigh 1-17-08

Kaleigh 1-17-08
Resting so she can get stronger.

Braden 1-17-08

Braden 1-17-08
Has his lamp off today. So we can see his cute little face.

Kaleigh

Kaleigh
Laying on her pink gingham blanket. They just changed out that morning.

Braden

Braden
That's Mommy's hand on Braden's little head. In an effort to calm him.

Kaleigh

Kaleigh
They had Kaleigh on her side today. What a large diaper she has on.

Braden

Braden
Loves to sleep on his tummy. Kaleigh likes it too.

Braden

Braden
1/14/08 Stretched out and relaxed

Kaleigh

Kaleigh
1/14/08 crinkling her forhead

kaleigh grace

kaleigh grace
1/12/08

Braden John

Braden John
1/12/08

About Me

My Photo
This is the story of an amazing set of twins that were born 16 weeks to soon and their little brother Grayson. Kaleigh Grace who lived an amazing 13 days and we miss daily. Braden our super hero who is now 4. This is our journey in parenting with challenges above and beyond the norm.